FACT Oregon

Empowering families experiencing disability.

Community

Our Response to COVID-19

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FACT Oregon logo
Dear FACT Families, Friends, and Community Partners,
Like many of you, we at FACT Oregon have been closely monitoring the reports regarding COVID-19. Today, Governor Kate Brown held a press conference to give her recommendations, and based on what she has outlined, we have made the decision to cancel any in-person trainings and events that we are scheduled to either host or attend in the community for the next 60 days. We are making every effort to keep both families and our staff safe and healthy, and we thank you for your understanding.
In the meantime, please know that as an organization we will still be operating and open during this time. Our support team will be available to answer questions and provide resources and all of our online resources continue to be available here on our website. Any scheduled webinars will go on as planned. In addition, we will be looking at opportunities to offer additional webinars, so keep an eye out for more information.
Please know that it’s okay to feel anxious at times of uncertainty. Let’s use this opportunity to look out for and take care of ourselves and each other, rally together, and act with purpose and not panic.
Sincerely,
Signature of Roberta Dunn, Executive Director
Roberta Dunn, Executive Director

¿Pensando en la Universidad? ¡Piense en el Programa de Estudios de Carrera y Comunidad (CCS) de la Universidad de Portland!

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Al pensar en prepararse para la edad adulta cuando su hijo/a se acerca al termino de la escuela secundaria, piense en el Programa de Estudios de Carrera y Comunidad de la Universidad Estatal de Portland (PSU) que ofrece un programa inclusivo de cuatro años una experiencia universitaria que fomenta el empleo, las habilidades de vida diaria independiente y la autodeterminación.

Aprenda más sobre el programa y lo que los estudiantes y padres que actualmente están en este programa tienen que decir:

Three young men stand side by side and smile for the camera in front of Portland State University
Massoud (centro) se junta con sus amigos, Sawyer (izquierda) y Cole (derecha).

El estudiante universitario Massoud Beardsley es un estudiante de segundo año del programa de Estudios de Carrera y Comunidad en la Universidad Estatal de Portland. Junto con otros estudiantes de PSU, Massoud ha completado cursos como Salud, Felicidad y Derechos Humanos; Escritura creativa; Cultura popular; e Introducción a la actuación. Massoud también trabaja medio tiempo en el Centro de Recreación de PSU junto con otros estudiantes de esta misma universidad. Le encanta el béisbol y pertenece al Club de Béisbol de PSU, que compite con equipos de otras universidades del noroeste. En su tiempo libre, sale con amigos y ellos disfrutan de una variedad de actividades dentro y fuera del campus.

Actualmente, hay 20 estudiantes universitarios en el programa CCS. El primer grupo de cinco estudiantes se graduará este año, recibirá sus certificados y participará en la ceremonia de graduación.

Empleo. La facultad y el personal de CCS han apoyado a cada estudiante para obtener un empleo pagado competitivo e inclusivo dentro de su primer año del programa. Los estudiantes reciben ayuda de trabajo individualizado y entrenamiento laboral. Los estudiantes trabajan junto con otros estudiantes de PSU en trabajos como en el jardín infantil del campus, en mantenimiento de jardines e instalaciones, en el Centro de Recreación, el Pabellón Vikings, la librería y la biblioteca. Algunos estudiantes también trabajan con empleadores fuera del campus, como por ejemplo Target, Smith Tea, Moda Center y Northwest Disability Support. Durante su tercer y cuarto año, los estudiantes de CCS se enfocan en conseguir un empleo antes de graduarse, en un trabajo centrado en su carrera que coincida con lo que les gusta e interese y que sea fuera de PSU.

Cursos Académicos. Cada estudiante cuenta con el apoyo del personal de CCS, consejeros académicos (que son estudiantes graduados en educación), el Centro de recursos para estudiantes con discapacidad de PSU y la facultad, para poder completar cursos académicos con otros estudiantes de PSU. El alumno selecciona estos cursos académicos de acuerdo a sus intereses y objetivos profesionales. Los estudiantes de CCS completan uno o más cursos en estudios universitarios junto con otros estudiantes de PSU tales como Portland; Inmigración, Migración y Pertenecer; Familia y sociedad; y otros. Los estudiantes también seleccionan una variedad de cursos ofrecidos por otros departamentos de PSU, tales como discurso público, introducción a la actuación, e introducción a los estudios de niños y familias. Además, los estudiantes disfrutan de clases como baile de salsa, entrenamiento con pesas y coro universitario.

Vida independiente. Los estudiantes de CCS aprenden habilidades de vida independiente mientras recorren el campus, manejan sus horarios personales y usan el correo electrónico y los mensajes de texto para comunicarse. Como Maddy Schumacher, una estudiante de tercer año de CCS, que describió sus actividades durante un período: “Tomé Inmigración, Migración y Pertenecer, ¡trabajé en el Centro de Recreación de PSU! … Me preparé para las reuniones y la clase y el trabajo y [llegué a mis citas] a tiempo”

Actividades de la vida en el campus. CCS alienta a los estudiantes a involucrarse en la vida del campus, incluidas las actividades sociales, deportivas, recreativas y de servicio voluntario. Cada estudiante de CCS puede elegir tener un “compañero navegador”, un estudiante de PSU que se une al estudiante de CCS para explorar y participar en las actividades del campus. Así es como Maddy describió algunas de las actividades de su vida en el campus: “Salgo con [mi compañero de navegación] y almuerzo y juego juegos con [amigos]. ¡Fui a caminar en la nieve y hacer kayak en los viajes al aire libre de PSU!”

Asya Beardsley, madre del estudiante de segundo año de CCS Massoud Beardsley, describió las actividades de Massoud con su compañero de navegación, “Massoud y su compañero de navegación se ofrecieron como voluntarios en el banco de alimentos, fueron a hacerse masajes … fueron a los juegos de baloncesto de PSU, fueron a un Juego de los Pioners … han ido a hacer yoga … Ellos no siempre terminan haciendo las mismas cosas. Ellos tienen la intención de hacer algo realmente divertido y diferente, algo que a ella le gustaría o algo que a él le gustaría hacer”.

Resultados. Los padres han observado resultados positivos para sus hijos e hijas que están participando en CCS. Conrad Schumacher, el padre de Maddy, explicó: “Casi todos los que ven a Madeliene dicen:” Dios mío, ¿qué ha sucedido? “. El crecimiento que ha logrado es fantástico. Puedo ver esto como … padre …, pero cuando veo viejos amigos que no la han visto por un tiempo o mi madre que la ve de vez en cuando, ellos notan más estos grandes avances …, este es un signo de altas expectativas: ese tipo de expectativas altas y razonables [del Programa CCS de PSU] y ella realmente está respondiendo a estas … Este es un crecimiento constante en todos los sentidos, pero especialmente en su habilidad para navegar las complejidades del mundo “.

La madre de Rachel, Ann Esteve, resaltó que: “… esto no ha sido solo un experimento, ha sido una verdadera experiencia universitaria. En el pasado pensábamos en que tal vez asistiera al community college o tomara algunas clases, así es que en realidad es totalmente increíble que ella esté aquí en PSU “

Orientación para nuevos estudiantes de CCS. En presentaciones recientes, dos estudiantes del último año de CCS, que se graduarán en 2020, dieron consejos para los estudiantes que están comenzando en el programa de CCS.

Will Larson comentó: “Mi consejo para un estudiante de primer año es que no te rindas. La Universidad puede ser difícil a veces, pero todos somos inteligentes, y tú puedes hacer cualquier cosa que te propongas. Si algo es difícil de hacer puedes pedir apoyo a los maestros y mentores, pero lo más importante es que el Programa CCS siempre puede ayudarte “.

Rachel Esteve exclamó,  “Mi consejo para tí es que seas tú mismo. Y que te diviertas siéndolo.”

 

CCS está aceptando aplicaciones para el Otoño del 2020!

¿No estás listo/a para aplicar? Puedes aprender más acerca de este programa asistiendo a una de las próximas NOCHES DE INFORMACIÓN!

 

Thinking about College? Think Portland State University’s Career & Community Studies!

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In thinking about preparing for adulthood as your child nears the end of high school, Portland State University’s Career and Community Studies program provides an inclusive, four-year college experience that fosters meaningful employment, independent living skills and self determination.

Learn more about the program, and what current students and parents have to say:

Three young men stand side by side and smile for the camera in front of Portland State University
Massoud (center) hangs out with friends, Sawyer (left) and Cole (right).

College student Massoud Beardsley is a sophomore in Career and Community Studies at Portland State University. Side-by-side with other PSU students, Massoud has completed courses such as Health, Happiness and Human Rights; Creative Writing; Popular Culture; and Introduction to Acting. Massoud also works part-time at the PSU Recreation Center along with other PSU students. He loves baseball and belongs to the PSU Baseball Club, competing with teams from other NW colleges. In his spare time, he hangs out with friends, and they enjoy a variety of activities on and off campus. 

Currently, there are 20 college students in the CCS program. The first group of five students will graduate this year, receiving their certificates and participating in commencement. 

Employment. The CCS faculty and staff have supported every student to gain inclusive competitive wage employment  within their first year of the program. Students receive individualized job development and job coaching. Students work alongside other PSU students in jobs such as campus child care, groundskeeping and facilities maintenance, the Recreation Center, the Vikings Pavilion, the bookstore, and the library. Some students also work for off-campus employers, such as Target, Smith Tea, Moda Center, and Northwest Disability Support. During their third and fourth years, CCS students focus on achieving employment prior to graduation in a career-focused job that matches their interests, outside of PSU. 

Academic Courses. Every student is supported by the CCS staff, academic coaches (who are graduate students in education), the PSU Disability Resource Center, and the faculty, to complete academic courses with other PSU students. These academic courses are selected by the student, based upon their interests and career goals.  CCS students complete one or more courses in University Studies along with other PSU students, such as Portland; Immigration, Migration and Belonging; Families and Society; and others. Students have also selected courses offered by a variety of other PSU departments, such as Public Speaking, Introduction to Acting, and Introduction to Child and Family Studies. Additionally, students enjoy classes such as Salsa Dancing, Weight Training, and University Choir. 

Independent Living. CCS students learn independent living skills as they navigate the campus, manage their individual schedules, and use email and text messaging to communicate. As Maddy Schumacher, a CCS junior, described her activities for one term, “I took Immigration, Migration, and Belonging,..I worked at the PSU Rec Center! …I prepared for meetings and class and work and [got to my appointments] on time.”

Campus Life Activities. CCS encourages students to become involved in campus life, including social, athletic, recreational and volunteer service activities. Each CCS student can choose to have a “peer navigator”, a PSU student who joins the CCS student in exploring and engaging in campus activities. Here is how Maddy outlined some of her campus life activities, “I hang out with [my peer navigator] and eat lunch and play games with [friends]. I went snowshoeing and kayaking with PSU Outdoor trips!” 

Asya Beardsley, mother of CCS sophomore Massoud Beardsley, described his activities with his peer navigator, “Massoud and his peer navigator have volunteered at the food bank together, they got massages together…they’ve gone to PSU basketball games, they went to a Trailblazers game… they’ve gone to yoga…They don’t end up always doing the same thing. They’ve really intended to do something really fun and different, something she would like or something he would like.” 

Outcomes. Parents have observed positive outcomes for their sons and daughters who are participating in CCS. Conrad Schumacher, Maddy’s father, explained, “Almost everyone that sees Madeliene says, ‘Oh my gosh, what has happened?’ The growth that she’s made is just phenomenal. I can see this as a…father…, but when I see old friends that haven’t seen her for a while or my mom who sees her every once in a while, [they see] these great strides…, that’s that sign of high expectations – that sort of high, reasonable expectations [of the PSU CCS Program] and she is really responding to those…This constant growth in really all ways, but especially in her ability to sort of navigate the complexities of the world.” 

Rachel’s mother, Ann Esteve, remarked, “…it hasn’t just been an experiment, it’s been a genuine college experience. In the past we thought maybe community college or some classes, and it’s kind of a mind-blower that she’s here at PSU.” 

Advice for new CCS students. In recent presentations, two CCS seniors, who will graduate in 2020, gave advice for beginning CCS students.

Will Larson remarked, “My advice to a first year student is don’t give up. College might be difficult at times but we are all smart, you can do anything you put your mind to it. If something’s hard use support like teachers and mentors, but more importantly the CCS Program always can help.”

Rachel Esteve exclaimed,  “My advice for you is to be yourself. And have fun with it.” 

 

CCS is accepting applications now for fall 2020!

Not ready to apply? You can learn more by attending an upcoming INFO NIGHT!

 

Team Ruby’s Story

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Have you ever struggled to participate in an activity that was inaccessible to you? Have you felt or seen the tears, frustration, and sadness that result?

At FACT Oregon, we interact with families every day whose children are told they can’t participate. Or only in a limited way. Or only in a certain place. Or only if it’s not “too hard.”

FACT Oregon created the All Ability Tri4Youth to provide youth with and without disabilities an opportunity to compete together in a triathlon open and accessible to all. Participation in community sports and recreation is a key aspect of pursuing a whole life for many families. All our kids deserve to participate in a way that celebrates their effort, recognizes barriers, and addresses their needs so that they can be successful.

Read this story from Angie Sims about her daughter’s experience:

“It is often difficult for Ruby to participate in organized sports or events. She has a hard time following concepts and directions. Ruby has several diagnoses that help explain why Ruby “does life” a bit differently — epilepsy, autism, ADHD…but for us, it’s just Ruby! This year Ruby, participated for the first time in FACT Oregon’s All Ability Tri4Youth. She had fun, and so did we!  

Woman and girl running together at the All Ability Tri4Youth
Ruby and her caregiver Dawn

Ruby succeeds best when she can watch and then do and when she is familiar with a venue.  Thankfully, FACT Oregon allowed participants to come the day before to drop off bikes, see the facilities, and look at the course. They shared a social story and communication board, and we watched a video about the event. We talked about how everyone participates differently. Ruby felt very independent and empowered participating with her teammate and caregiver Dawn while we cheered her on from the sidelines.  Although she was nervous, she was also excited, and with everyone cheering for her, Ruby felt like a star! She was able to take that energy and stay focused through the finish line.  

At the All Ability Tri4Youth, everyone is a winner. Every participant is genuinely supported, and the event is relaxed, sensory friendly, and with no expectations except to have FUN. And really, that is our main focus in life. At other events, we feel the need to explain Ruby’s behaviors or teach her social norms she doesn’t fully grasp. But at FACT Oregon, we just see acceptance.

For us, the All Ability Tri4Youth is a fun way to be a part of something bigger. It is truly magical to be involved in a community that allows us all to recognize life for what it really is. I give thanks for Ruby leading me to this place in life and thank FACT Oregon for the ongoing education, support, and unique events to allow us to come together and witness greatness in all of its forms!”

 

But FACT Oregon needs your help. The All Ability Tri4Youth is one of many ways we support families and connect them to resources and community. Our trainings and peer support line help families get information and guidance on special education, disability services, behavior, assistive technology, visioning, community access, planning for adulthood, and more. This year, we are traveling across the state with our free day-long Regional Learning Summits. And our support team is busy connecting with families by phone and email in English and Spanish, and working through interpreters in other languages.

 

If you value being part of a community that, as Angie says, “allows us to come together,” then the time to donate is now.

 

Your generosity ensures our ongoing ability to support families experiencing disability. 

We are grateful to The Collins Foundation for a 1:1 CHALLENGE MATCH.

Donate today to take advantage of this 1:1 match of new and increased gifts!

 

Inclusive Storytime (ages 3-5 years)

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Children and their families are invited to participate in this lively and interactive storytime. Kids with varying learning styles and abilities learn together in a safe and supportive environment where respect and appreciation for differences is encouraged. Children who may need visual/communication supports, a more predictable routine, or adapted materials due to a motor impairment are welcome to attend.

Preregister at [email protected]; we can send materials home to better prepare your child for meaningful participation. 2nd & 4th Fridays 10:15am Hillsboro Brookwood Library.

Making Sense of Sensory Showings

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By Nicole Silverman

“There’s no adult special needs grocery store, restaurant, or post office.”

I’ve heard this phrase several times and it used to HAUNT me! Especially at a time in my life when I already felt like we couldn’t leave the house for ANYTHING because of my son’s behaviors and medical issues. I remember the day my husband and I called “being out in society” quits! It was summer, we had just moved into a new neighborhood and my son was 3 years old.  We were walking a few blocks to a neighborhood picnic… our first one! My son, Benjamin was in the wagon and as soon as we got to the small park with all the people – his screaming began… and didn’t stop. It felt like all 50 some people fell completely silent and were just watching us. I remember sweat literally pouring down my face and so were the tears. Nobody said hi, nobody came over to see if they could help, we were like weird aliens coming to earth for the first time. But what happened next, really sealed the “never leaving our house again” for both of us. Benjamin had severe acid reflux and when he became really upset, he would throw up! And he did… loud and lots and all three of us were covered in it. We could not leave the park soon enough. Walking quickly back to our house we decided we were done going out in public. We’d just stay home… FOREVER!

This is such a bad place to be… and if you are in this place right now in your journey you are not alone. But do not give up hope! Although it’s not for the faint of heart and it’s certainly not easy, COMMUNITY is worth it! Living a WHOLE life is worth it and your child learning to do hard things to be included in society is worth it the most!  

One of the reasons I LOVE working at FACT Oregon is how we partner with communities to provide what we call “soft landings”.  Our next one is April 28th at Northwest Children’s Theatre, for their sensory showing of Tenali, the Royal Trickster. What is a sensory showing? Basically, the lights are dimmed, the sound turned down, often times it’s a shorter time frame and ANYTHING goes. Seriously. It’s the perfect place to come and do something that might be very hard and I promise, you will not have 50 strangers looking at you like aliens! I remember our first time going to a sensory showing… just coming into the doors and taking a seat was a success for us. Literally, we left after 10 minutes. Now, we can come to the shorter plays and stay the entire time. We invite friends to go with us and practice keeping our shoes on the ENTIRE time. (my kid is still the loudest one there!)

Benjamin and our family at a sensory showing

So what happens for our family at those events that aren’t sensory? Sometimes we’re successful, and sometimes it’s really hard, dare I say disastrous.  But we are working daily towards getting to all events through many avenues. Does society need to be more accepting of those who need different supports to be involved in community? Absolutely! And I will continue to advocate and educate in every way possible. My goal as Benjamin’s mom is to never stop trying, learning, exploring ways to help him overcome some of his own obstacles and keep moving him forward with the right supports to be as successful as possible in the future.

My biggest encouragement to all families, especially with those who deal with big behaviors like we do… Don’t give up! Keep moving forward! Try it! And when it goes terribly wrong, take a break, call us here at FACT, investigate and rethink strategy… and try it again from a different angle.

p.s. My son’s 10 now… last summer at our neighborhood picnic we walked there with our neighbors/friends we now know, stayed and ate dinner and had a blast! Don’t give up! Want to join us on April 28th for NWCT’s sensory showing of Tenali, the Royal Trickster? Click for free tickets and details!

 

FACT Oregon
2475 SE Ladd Ave. Suite 430
Portland, OR 97214

(503) 786-6082 or 1 (888)-988-3228