Resources
Access Technologies, Inc. (ATI)
Oregon's statewide Assistive Technology Program, ATI, specializies in ergonomic risk assessments, assistive technology evaluations, technology training services, and the Oregon Technology Access for Life Needs Project (TALN).Americans with Disabilities Act (ADA)
Contains the full text of the ADA Statute, the Accessibility Guidelines, and other Assistance Documents.Autism Society of Oregon (ASO)*
The state chapter of the Autism Society of America (ASA) which is the the oldest and largest grassroots organization within the autism community. Autism Society of Oregon (ASO) seeks to empower individuals with autism, their families and their service providers to improve the quality of their lives through support and information.
* FACT Coalition member organization.
Center for Excellence in Developmental Disabilities
One of two University Centers for Excellence in Developmental Disabilities Education, Research, and Service (UCEDD) that works with people with disabilities, members of their families, state and local government agencies, and community provders in projects that provide training, technical assistance, service, research, and information sharing, with a focus on building the capacity of communities to sustain all their citizens. The Center for Excellence in Developmental Disabilities is located at the University of Oregon, College of Education in Eugene, OR.Center for the Study and Advancement of Disability Policy
http://www.disabilitypolicycenter.org/
The Center for the Study and Advancement of Disability Policy (CSADP) provides public education, leadership development and training, technical assistance and information dissemination, and conducts action-research and analysis of public policy issues affecting individuals with disabilities and their families.
ROBERT "BOBBY" SILVERSTEIN is the Director of the Center for the Study and Advancement of Disability Policy (CSADP) in Washington, D.C. and former staff director and chief counsel to the U.S. Senate Subcommittee on Disability Policy, chaired by Senator Tom Harkin.
Central Oregon Down Syndrome Network (CODSN)*
A network of families in central Oregon, educating and providing resources, whose mission is to promote a positive understanding of Down syndrome and inclusion, as well as be a source of support, information, and education for families, professionals and individuals touched by Down syndrome.
* FACT Coalition member organization.
Children with Diabetes
An on-line community for children with diabetes and their families.Circle of Inclusion
http://www.circleofinclusion.org/
Offers demonstrations of and information about the effective practices of inclusive educational programs for children from birth through age eight, for early childhood service providers and families of young children. Information is available in Spanish, Korean, Japanese, and Chinese.
Connect for Kids
Offers information and tools about issues affecting children, families, and communities and how to take action to improve policies and programs, and, ultimately, the fabric of our nation as a whole. Connect for Kids is managed by the Forum for Youth Investment. In 2007, Connect for Kids joined forces with Child Advocacy 360 to continue to provide excellent articles and annotations of “best of the Web” child-focused content.
Consortium for Appropriate Dispute Resolution in Special Education (CADRE)
The National Center on Dispute Resolution, encourages the use of mediation and other collaborative strategies to resolve disagreements about special education and early intervention programs. This website contains tips and tools towards effectively resolving special education disputes, so as to reduce the use of expensive adversarial processes.Deschutes County Local Interagency Coordinating Council*
http://oregon.pmhclients.com/index.php/about/detail/109/
A Local Interagency Coordinating Council’s (LICC) role is to provide assistance and oversight of Early Intervention/Early Childhood Special Education (EI/ECSE) services at the local level. The Deschutes LICC is located in Deschutes County.
* FACT Coalition member organization.
Diabetes Education Program (NIH)
http://ndep.nih.gov/hcp-businesses-and-schools/Schools.aspx
From the National Diabetes Education Program of the National Institutes of Health, this page is geared toward school personnel, but has information and links to resources of direct interest to families with children experiencing diabetes.
Diabetes Information for Parents and Kids
http://www.diabetes.org/living-with-diabetes/parents-and-kids/
For Parents and Kids is a web-based reference on diabetes from the American Diabetes Association for parents whose child has just been diagnosed. It covers the basics of diabetes treatment, as well as issues that may be experienced. It is not meant to replace advice and education from the child's health care team, but rather to be used as a reference as you begin your diabetes journey.
Disability Compass*
http://www.disabilitycompass.org/
Disability Compass is an interactive web-based resource center, developed in Oregon, providing local community and national information on services, products, and special health care resources for people with disabilities, their families and their supporters. Please visit this site to further search for links to resources within Oregon communities, statewide, and abroad.
The Compass Cool Find, features a technology item once a month through audiovideo formatting.
* FACT Coalition member organization.
Disability History Museum
http://www.disabilitymuseum.org/
Home to a searchable, theme-based digital collection of documents and images related to disability history in the United States, drawn from public and private collections around the country. The site provides tools towards helping all people, with and without disabilities, develop a deeper understanding of human differences and how vital to our common life the historical experiences of people with disabilities have been.
Disability Info.gov
Provides quick and easy access to comprehensive information about disability programs, services, laws and benefits. You can begin your search by visiting any of nine subject areas--employment, education, housing, transportation, health, benefits, technology, community life, and civil rights. To find disability resources in your state just click on the Find State and Local Resources map located in each of these subject areas.
Some of the many topics you will find information about on DisabilityInfo.gov include:
Americans with Disabilities Act (ADA) Autism and Other Developmental Disabilities Fair Housing Rights Social Security Disability Benefits Vocational Rehabilitation
Disability is Natural
http://www.disabilityisnatural.com/
Provides information, articles, and more on inclusion, respectful language, looking at abilities versus disabilities.
Disability Rights Oregon (DRO)*
http://www.disabilityrightsoregon.org
(formerly the Oregon Advocacy Center), Disability Rights Oregon (DRO), is an independent nonprofit law firm that promotes and defends the rights of individuals with disabilities anywhere in Oregon. All services are free of charge and confidential, provided by experienced and dedicated attorneys, advocates, intake specialists and administrative staff.
* FACT Coalition member organization.
Dougy Center
The Dougy Center, a National Center for Grieving Children & Families, has a nice list of publications, including guidebooks for adults, resources for schools, workbooks for kids, videos & pamphlets--as well as materials to help individuals start a grief support program in their own community.
Family Center on Technology and Disability (FCTD)
A national resource center, operating entirely through program support from the US Department of Education's Office of Special Education Programs (OSEP). FCTD supports organizations and programs that work with families of children and youth with disabilities, offering a range of information and services on the subject of assistive technology.Family Educational Rights and Privacy Act (FERPA)
The Buckley Amendment is the short name for the federal law known as the Family Educational Rights and Privacy Act (FERPA). This law gives parents and guardians of students under 18 years of age, and all students over 18, the right to see, correct and generally control access to student records. This law can be found beginning at 20 USC §1232g. Regulations are found at 34 CFR §99.Family Support Center on Disabilities—Knowledge & Involvement Network (KIN)
http://www.familysupportclearinghouse.org/Pages/Home.aspx
A project which has been funded by the Administration on Developmental Disabilities of the U.S. Department of Health and Human Services, offers a centralized resource on the full range of options available to individuals with disabilities and their families, nationwide. Included are organizations, general disability resources, state-specific information, family forums, and personal stories.
Family Web 2.0
Community Options’ Family Web is a network where parents can come together to support one another by sharing information, experiences, and knowledge. Although these parents are located all across the country, the interweaving of their ideas and experience makes our family web strong.
Guardianship
http://www.arcoregon.org/guardianship1.htm#lin
Guardianship is an important issue for individuals with developmental disabilities and their families and caregivers. The following information is offered on The Arc of Oregon Guardianship web page, as a primer on guardianship and Arc programs.
Guardianship—Alternatives to Guardianship
http://ruralinstitute.umt.edu/transition/WebConf_materials.asp
The question of whether to pursue legal guardianship or not. Here is a listing of linkages to alternative perspectives allowing families to remain respectfully involved in their children's lives as they transition into adulthood.
Healthy Kids for a Healthy Oregon
http://www.oregonhealthykids.gov/DHS/healthykids/index.shtml
Healthy Kids is free or low-cost health care coverage for Oregon children who do not have health insurance. Even kids with current health conditions can enroll. Coverage lasts for at least one full year and can be longer so long as the child is still eligible.
Help Autism Now Society (HANS)*
Founded in 2002 by a physician and nurse, parents of a child severely affected with autism from birth. For parents, HANS has developed television-advertising spots and these started airing in September of 2006 throughout the Pacific Northwest.
* FACT Coalition member organization.
I’m Tyler
Ability Awareness--this is the goal for high schooler, Tyler. Believing that "what a person, any person CAN do is much more important than he/she can't".
Including All Kids
http://www.includingallkids.org/
Provides guidance to help youth program leaders and volunteers expand extracurricular opportunities for all young people to be engaged by making their organizations and programs more accessible and inclusive.
Inclusive Child Care Program*
http://ocdd.org/index.php/ocdd/whatwedo/15/
Serves families of children from birth through 17 years of age who: (1) Have physical, developmental, mental, emotional, behavioral, or medical disabilities; and (2) Need extra supports to be cared for in typical child care settings.
* FACT Coalition member organization.
Institute for Community Inclusion (ICI)
http://www.communityinclusion.org/
ICI (University of Massachusetts Boston) offers training, clinical, and employment services, conducts research, and provides assistance to organizations to promote inclusion of people with disabilities in school, work, and community activities.
International Rett Syndrome Foundation*
The International Rett Syndrome Foundation (IRSF) is a 501(c)(3) non-profit corporation established in July 2007 through the strategic merger of the Rett Syndrome Research Foundation (RSRF) and the International Rett Syndrome Association (IRSA). The Regional Rep Program has been established to provide emotional support, information and resources to families affected by Rett syndrome.
* FACT Coalition member organization.
Juntos Podemos*
A center for Latino families who have a child with developmental disabilities.
* FACT Coalition member organization.
Juvenile Rights Project, Inc
Provides legal service to children and families without the means to retain counsel in the state of Oregon.Kids Included Together San Diego Inc
Specializing in providing best practices training for community-based youth organizations committed to including children with disabilities into their existing recreational, social and child care programs. Recognizing the tremendous need in the community, KIT established the National Training Center on Inclusion (NTCI) in San Diego, CA--a state-of-the-art training facility and learning lab that creates and disseminates best practice information to the out-of-school time field. NTCI offers live training, eLearning and a library of books, videos/DVDs and other materials related to inclusion and disability for use by youth providers and KIT trainers.
Kids Together Inc
Offers information and resources on inclusion for children and adults with disabilities. The information is intended to be helpful to families, professionals, educators, advocates, self-advocates and the community!
Lake Oswego Special Education PTA (LOSEPTA)*
http://factoregon.org/index.php/about/detail/42/
An organization made up of parents and educators of children with special needs in the Lake Oswego School District, Lake Oswego, Oregon. We recognize that every child deserves excellence in education and quality of life. We are committed to serving the special education student and their families.
* FACT Coalition member organization.
Map to Inclusive Child Care
http://www.cainclusivechildcare.org/camap/inclusion.htm
California's Map to Inclusive Child Care Project to create a statewide system of support, training and resources that gives all families and providers barrier-free access to inclusive child care. Included are links to inclusive practices in early childhood programs.
National Association for the Education of Young Children
Dedicated to improving the well-being of all young children, with particular focus on the quality of educational and developmental services for all children from birth through age 8.
National Dissemination Center for Children with Disabilities (NICHCY)
Provides information on disabilities and disability related issues.National Foundation for Celiac Awareness
Offers information on gluten-free eating and living, including live and archived webnairs. The National Foundation for Celiac Awareness (NFCA) is a 503(c)(3) non-profit organization dedicated to raising awareness and funding for celiac disease that will advance research, education and screening amongst medical professionals, children and adults.
Northwest Down Syndrome Association (NWDSA)*
Northwest Down Syndrome Association (NWDSA) mission is to create and nurture a loving and inclusive community celebrating every person with Down syndrome. NWDSA works to increase education, promote public understanding and acceptance, and encourage full inclusion of individuals with Down syndrome in the community.
* FACT Coalition member organization.
OHSU/CDRC Multilingual Web Resource
http://www.ohsu.edu/oidd/LEND/multilingual_resources/index.html
Developed through the Oregon Institute on Disability and Development (OIDD)'s Leadership Education in Neurodevelopmental and Related Disabilities (LEND) program, provides links to websites in a variety of languages, to provide information regarding developmental conditions; as well as local, national, and international resources for families.
Oregon Administrative Rules
http://arcweb.sos.state.or.us/banners/rules.htm
ORS 183.310(9) defines "rule" as "any agency directive, standard, regulation or statement of general applicability that implements, interprets or prescribes law or policy, or describes the procedure or practice requirements of any agency." The Oregon Administrative Rules are published by the Oregon Secretary of State.
State regulations pertaining to special education can be found beginning at Oregon Administrative Rules, OAR Chapter 581: www.sos.state.or.us/archives/rules/OARS_500/OAR_581/581_tofc.html
Oregon Child Care Resource and Referral Network
http://www.oregonchildcare.org
Child Care Resource and Referral Agencies (CCR&Rs) are grass roots programs that provide child care referrals and parenting information to parents, training and technical assistance to child care providers, information and support for employers and for the community. CCR&R programs work with parents seeking child care, as well as parents with questions about what is important in child care, or perhaps with questions about their child's development. CCR&R programs work with providers, connecting them with parents needing child care, providing access to child care trainings, and providing information and technical assistance.
Oregon Council on Developmental Disabilities (OCDD)*
Conducts and supports a number of advocacy and systems’ change efforts with and on behalf of Oregonians with developmental disabilities and families.
"Voices From Fairview" --In 2000 Fairview Training Center, the largest insitution in Oregon for people with developmental disabilities was closed. This video features accounts by former residents as well as original footage from the 1959 promotional video.
* FACT Coalition member organization.
Oregon Department of Education
Website for Oregon's Department of Education. Special Education is found under the Office of Student Learning and Partnerships.
Go to Oregon Tax Exemption to download document produced by the Oregon Department of Education on information concerning the Oregon tax exemption for parents of children with disabilities for calendar year ending December 31, 2009.
Oregon Department of Human Services, Developmental Disabilities Services
Case management (service coordination) and other services are available for children and adults in Oregon, eligible as developmentally disabled. Check the phone book under county listings for your local office.Oregon Department of Human Services, Office of Vocational Rehabilitation Services (OVRS)
Provides employment evaluations, training and other work related services to eligible persons with disabilities in the state of Oregon. Check your phone book under state listings for your local branch office.Oregon Family Support Network (OFSN)*
A statewide non-profit organization of families with children and adolescents who have behavior, emotional and mental health challenges. The Oregon Family Support Network (OFSN) network of families throughout the state, offer support group meetings throughout the year, youth programs, advocacy training, and education programs.
* FACT Coalition member organization.
Oregon Institute on Disability and Development (OIDD)
One of two University Centers for Excellence in Developmental Disabilities Education, Research, and Service (UCEDD) that works with people with disabilities, members of their families, state and local government agencies, and community provders in projects that provide training, technical assistance, service, research, and information sharing, with a focus on building the capacity of communities to sustain all their citizens. OIDD is located at the Oregon Health Sciences University, Child Development and Rehabilitation Center in Portland, OR.Oregon Law Help
For legal information about public benefit programs in Oregon.
Oregon Parent Training and Information Center (OrPTI)*
The statewide parent training and information center serving parents of children with disabilities. Their goal is to educate and support parents, families and professionals in building partnerships that meet the needs of children and youth with the full range of disabilities ages birth to 26.
* FACT Coalition member organization.
Oregon Revised Statutes
http://www.leg.state.or.us/ors/home.html
The text appearing in this database was produced from material provided by the Legislative Counsel Committee of the Oregon Legislative Assembly. The official record copy is the printed published copy of the Oregon Revised Statutes.
State special education law can be found beginning at Oregon Revised Statutes, ORS Chapter 343: http://www.leg.state.or.us/ors/343.html
Oregon Technical Assistance Corporation (OTAC)*
Through a myriad of projects and initiatives in Oregon and across the country, Oregon Technical Assistance Corporation (OTAC) promotes full participation in community life for individuals with disabilities, seniors and their families through the delivery of training, technical assistance and related services.
* FACT Coalition member organization.
Oregon Technology Access Program (OTAP)
Offers statewide services for children from birth to 21 years, regarding the use of technology for children with disabilities--including information, training, technical assistance, referral, and a used equipment marketplace.Padres en Acción*
http://factoregon.org/index.php/about/detail/660/
Spanish-speaking families in the Portland Metro who celebrate their children who experience disabilities, learning from each other and building a community with empowerment and support.
* FACT Coalition member organization.
Partnerships for Inclusion
A statewide technical assistance project with offices in the western, central, and eastern regions of North Carolina. Partnerships for Inclusion (PFI) provides training and consultation to support the inclusion of young children with disabilities, ages birth through five, in all aspects of community life.
Section 504 & Title II of the ADA
This website provides information on Section 504 of The Rehabilitation Act of 1973, which prohibits discrimination based on disability in educational programs or activities receiving federal financial assistance, and Title II of the Americans with Disabilities Act (ADA), which prohibits discrimination based on disability in public entities. Linkages to various disability discrimination resources is also provided.Social Security Administration
Social Security Administration with information on disability, Medicare, Supplemental Security Income (SSI) for adults and children, Social Security Disability Insurance (SSDI), Ticket to Work, The Red Book--A Guide to Work Incentives, and more.
For representative payees, the Social Security Administration recently launched a new online accounting report option. When representative payees receive the paper form in the mail telling them that it's time for their annual accounting report, they can go to www.socialsecurity.gov/payee and follow the instructions.
The Arc of Benton County*
A non-profit organization that focuses its efforts on enhancing the lives of people who experience intellectual and/or developmental disabilities.
* FACT Coalition member organization.
The Arc of Multnomah-Clackamas*
The role of what is now known as The Arc of Multnomah-Clackamas continues as an enduring advocate and provider of supportive services. It remains a neutral place to receive information and support, to ask questions, learn about legal rights, and to engage in personal and community advocacy.
* FACT Coalition member organization.
The Arc of Oregon*
A statewide membership organization of more than 2000 individuals, working together to create a better tomorrow for individuals with intellectual and developmental disabilities, and their families. The Arc of Oregon advocates for the rights and full community participation of all children and adults with intellectual and developmental disabilities.
* FACT Coalition member organization.
The Arc of Washington County*
Provides leadership, advocacy, education and opportunities for people with mental retardation and/or developmental disabilities and their families.
* FACT Coalition member organization.
The Individuals with Disabilities Education Improvement Act (IDEIA or IDEA 2004)
The Individuals with Disabilities Education Improvement Act (IDEIA or IDEA 2004) can be found beginning at 20 USC §1400. Federal regulations are at 34 CFR § 300. The IDEA used to be called the Education for All Handicapped Children Act (EAHCA or EHA) or P.L. 94-142. Additional websites are: http://idea.ed.gov/.The National Fragile X Foundation
http://www.fragilex.org/html/home.shtml
National website dedicated to Fragile X, a family of genetic conditions, which can impact individuals and families in various ways.
The Rider’s Voice
Featuring the stories of twenty-five new independent travelers and advocates who have shared in the RideWise experience. Each story is a powerful, unique, first-person account of what it means to travel independently; to move about the community with purpose and without harm. The interactive website location of the publication allows for viewing of photos, reading text, and listening to audio of interviews.
The State of Disability in America
http://www.ucp.org/uploads/StateofDisability.pdf
This is a great piece on the current state of disability in America, by the Life without Limits Project: Organizing for Change, covering disability rights in America, healthcare and independence, free and appropriate education, employment, and housing.
The Youthhood—Where Teens Prepare for Life After High School
http://www.youthhood.org/index.asp
A curriculum-based tool designed for use by all youth--with and without disabilities-- that can help young adults plan for life after high school. Although the site addresses youth directly, it is intended to be used as a curriculum within a classroom, community program, or in any setting where adults are working with youth to set goals and plan for the future. The Youthhood can help to develop and enhance a student’s Individualized Education Plan (IEP).
Through the Looking Glass
http://lookingglass.org/index.php
A nationally recognized center that has pioneered research, training, and services for families in which a child, parent, or grandparent has a disability or medical issue. Through the Looking Glass (TLG) is a disability community based nonprofit organization, which emerged from the independent living movement, and was founded in 1982 in Berkeley, California. Their national parenting with a disability blog can be found at http://parenting-with-a-disability.blogspot.com/
Transition Community Network
A wealth of resources are available for high school students, parents, teachers, administrators, potential and current employers, and professionals in agencies that provide services to students with disabilities. The site was developed to quickly link people to transition-related information in Oregon.
For information and resources related to post-school outcomes, Oregon diploma options, updates, requirements go to Post-School Outcomes--Transition Reference Booklet.
United Cerebral Palsy of Oregon and SW Washington (UCP)*
http://www.acommunityforeveryone.org/
Offers direct program service, information, and advocacy for people with cerebral palsy and other disabilities throughout Oregon and SW Washington.
* FACT Coalition member organization.
Where?s Molly
For decades up until 2000, Fairview Hospital and Training Center in Salem was the common destination for children and adults with developmental disabilities in Oregon. Where?s Molly, produced by Jeff Daly and shown at the 30th Portland International Film Festival in 2007, is Daly's personal story of family reunification, changing attitudes about the care and rights of the mentally disabled, and of the hope that for other families, the value and meaning of life is not judged by capability, but by spirit and love. His sister was one of thousands of "Molly's" placed in institutions across the country--often forever separated from family members by the belief that closing the door and not looking back was best for everyone.
Wrightslaw
Provides information about special education law and related advocacy to parents, educators, attorneys and others working on behalf of children with disabilities.
Family and Community Together (FACT) is a family leadership coalition working to facilitate positive change in policies, systems and attitudes affecting Oregonians with disabilities or chronic health concerns and their families. More about FACT ...