International Rett Syndrome Foundation

The International Rett Syndrome Foundation (IRSF) is a 501(c)(3) non-profit corporation established in July 2007 through the strategic merger of the Rett Syndrome Research Foundation (RSRF) and the International Rett Syndrome Association (IRSA), realizing a more unified effort to approach the challenges faced by families and those living with Rett Syndrome. IRSF believes the fastest way to a cure and treatments includes making significant and strategic investments in Research while bolstering Family Support, Public Awareness, and Advocacy programs.

The Regional Rep Program has been established to provide emotional support, information and resources to families affected by Rett syndrome. It has become an integral part of IRSF.